TITLE: RESEARCH OFFICER
REPORTING TO: Head of Advocacy, Research and Policy
TYPE OF CONTRACT: Part-time (4 day week)/ Full-time (5 day week),
DUBLIN BASED.
SALARY: € *, * pro
rata
LOCATION: Debra's office is based at Butterfly Cottage, 8 Clanwilliam
Terrace, Dublin 2. Flexible hybrid working.
Debra is a national charity established in * to
provide support and drive research into treatments for those living
with the rare skin condition, Epidermolysis Bullosa (EB). EB is an
extremely painful skin-blistering condition, which leaves the skin as
fragile as the wings of a butterfly.
We are a person-led charity, with an ambitious and passionate team,
who care deeply about the people we work with. We actively live our
core values of Togetherness, Person-Centredness, Passion, Boldness and
Integrity, with people at the heart of everything we do.
Reporting to the Head of Advocacy, Research and Policy, the key
elements of this role are to manage all aspects of research
communication to the EB community of families, researchers and other
stakeholders, manage the process for Patient and Public Involvement
(PPI) in research, and support the Head of Advocacy, Research and
Policy in all other aspects of research. The successful candidate will
work as part of a passionate, supportive, patient-centred team. This
job description acts as a guide to the role of Research Officer. The
role may change to meet the changing requirements of the organisation
at any time, after discussion with the post holder.
MAIN DUTIES AND RESPONSIBILITIES
* Manage patient and public involvement (PPI) for research and
advocacy including organising and facilitating PPI workshops, meetings
with researchers, PPI training and maintaining PPI engagement within
the charity.
* Produce accessible content on all aspects of EB research for a
non-scientific audience.
* Communicate across all stakeholder groups including, national and
international EB researchers, healthcare professionals, and other
Debras.
* Stay abreast of national and international research in the field.
* Manage and maintain content for the research section of the Debra
website and create regular content for Debra's 'X' account.
* Oversee research funding schemes, projects and application
support.
* Support the coordination of Debra-led research and advocacy
studies.
* Conduct qualitative and quantitative data collection, as well as
literature reviews for internal research studies.
* Produce research reports, including PPI workshop reports and an
annual research report following Debra brand guidelines.
* Contribute to Debra’s research strategy.
* Support the development and maintenance of standard operating
procedures and policies related to research.
* Contribute to national and international research forums and
policy development.
* Support the research manager on all tasks relating to research and
research advocacy.
PERSON SPECIFICATION
ESSENTIAL
* Degree level qualification (minimum).
* Good knowledge of the health research environment.
* Experience in digital communications and regular user of social
media.
* Excellent verbal and written skills and the ability to make
complex topics accessible.
* Exceptional project management and computer skills, with excellent
attention to detail.
* Flexibility to occasionally travel and work outside standard
hours.
* Fluency in written and spoken English.
DESIRABLE
* Experience working in the charity sector.
* Experience in managing and facilitating groups and meetings.
* Experience of PPI.
PERSONAL ATTRIBUTES
* Enthusiasm for the overall vision of Debra.
* Passionate about PPI and developing meaningful PPI relationships.
* Personable, with excellent communication skills and an ability to
build relationships and work with professionals at all levels.
* Self-motivated, highly capable of working independently and with a
strong work ethic.
* Disciplined, organised and thorough.
* Strong empathetic nature, with a genuine passion and care for
people impacted by EB.
BENEFITS
* Annual leave of * days.
* Five discretionary leave days: Good Friday, Christmas Eve, working
days between Christmas and New Year.
* Employer-matched Pension Scheme up to 6%, following 6-month
probationary period.
* Employee Assistance Programme.
* Opportunity for flexible/hybrid working.
* Bike to Work Scheme.
APPLICATIONS
Please email your CV and accompanying cover letter outlining your
suitability for the role to * by 5pm on Friday,
*th May *, with the
subject line as follows: First Name Last Name – Research Officer.
Informal queries to *.
The position is subject to Garda clearance and reference check.
Candidates must be legally entitled to work in Ireland at the time of
application. Debra is an equal opportunities employer. Management
reserves the right to amend or change this job description as
required.
We need : English (Good)
Type: Permanent
Payment:
Category: Health
